After a meeting with FOP clinicians, patients, advocates, caregivers and community members, a paper was published in the OJRD discussing challenges, opportunities, as well as providing recommendations to address patients' needs. Publication: https://t.co/
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RT @MuscleStemCell: Current challenges and opportunities in the care of patients with fibrodysplasia ossificans progressiva (FOP): an inter…
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Current challenges and opportunities in the care of patients with fibrodysplasia ossificans progressiva (FOP): an international, multi-stakeholder perspective https://t.co/FPZhoky7WT
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Pignolo et al: Current challenges and opportunities in the care of patients with fibrodysplasia ossificans progressiva (FOP): an international, multi-stakeholder perspective https://t.co/3xSU7Sou2L