“Why them, why me, why us?” The experiences of parents of children with lysosomal acid lipase deficiency: an interpretative phenomenological analysis study

'Why them, why me, why us?' Click the link below to read today's paper exploring the #livedexperience of parents of children with lysosomal acid lipase deficiency. https://t.co/irbhbZpB7i

'Why them, why me, why us?' A fantastic look into the experiences of parents of children with lysosomal acid lipase deficiency. https://t.co/wzyNfFcmnX

RT @llopezdefrutos: Parents’ opinion matters. Because at the end of the day is important remember that their children, are the focus of our…

Parents’ opinion matters. Because at the end of the day is important remember that their children, are the focus of our job... https://t.co/2YXsD1xWps