Mental health care for rare disease in the UK – recommendations from a quantitative survey and multi-stakeholder workshop @eurordis @yann_eurordis @NI_RDP @rareireland https://t.co/wgBvkchM3B
4,938 followers
977 followers
It’s #CarersWeek2023 Myalgic Encephalomyelitis (ME) isnt rare going by international prevalence rates tho with lack of guideline policy med educ & knowledge one would think it rarely exists or doesn’t exist at all @DonnellyStephen @CcoHse we urgently n
590 followers
RT @raisingrareness: ‘Rare disease patients & carers report significant impacts on mental health’. Shocking only 2% of respondents had be…
3,684 followers
RT @raisingrareness: ‘Rare disease patients & carers report significant impacts on mental health’. Shocking only 2% of respondents had be…