Results of a Patient Reported Experience Measure (PREM) to measure the rare disease patients and caregivers experience: a Spanish cross-sectional study

Overview of attention for article published in Orphanet Journal of Rare Diseases, February 2021

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Estudio pionero sobre #experienciapaciente con #enfermedadesraras usando IEXPAC como PREM: retraso diagnóstico, experiencia peor en primaria que en especializada; y no se atienden necesidades emocionales y sociales. Mucho por hacer https://t.co/GBebIaiG

20 Jun 2022

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