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RT @itinerare_uzh: What are the needs of parents whose children have a rare disease? 👨👩👧👦family-focused care ❓coping with uncertainty 📯e…
RT @itinerare_uzh: What are the needs of parents whose children have a rare disease? 👨👩👧👦family-focused care ❓coping with uncertainty 📯e…
What are the needs of parents whose children have a rare disease? 👨👩👧👦family-focused care ❓coping with uncertainty 📯empathic communication 🦸♀️practical support ℹ️information 👩⚕️psychological support 🧩 interdisciplinary care 🫂 social support Read more