Rare Disease, Advocacy, and Caregiver Burnout
Article in The American Journal of Bioethics (June 2023)
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Sanfilippo syndrome: consensus guidelines for clinical care
Article in Orphanet Journal of Rare Diseases (October 2022)
Effectiveness of time-limited eye movement desensitization reprocessing therapy for parents of children with a rare life-limiting illness: a randomized clinical trial
Article in Orphanet Journal of Rare Diseases (September 2022)