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X Demographics
Mendeley readers
Attention Score in Context
| Title |
Appropriate and inappropriate care in the last phase of life: an explorative study among patients and relatives
|
|---|---|
| Published in |
BMC Health Services Research, November 2016
|
| DOI | 10.1186/s12913-016-1879-3 |
| Pubmed ID | |
| Authors |
Eva Elizabeth Bolt, H Roeline Willemijn Pasman, Dick Willems, Bregje Dorien Onwuteaka-Philipsen |
| Abstract |
Many people are in need of care in the last phase of life. However, the care they receive is not always appropriate. For instance, people can receive overly aggressive treatment or can have limited access to palliative care. The term appropriate care is often used by policy makers, while it is unclear what care recipients consider as appropriate care. This study aims to identify what care patients and relatives perceive as appropriate and as inappropriate in the last phase of life, for patients suffering from different conditions. We designed an online survey with open questions. Participants were recruited through organizations for patients, older people and medical professionals. Answers were analysed after data-driven coding. Forty-five patients and 547 relatives described the care they received and described why this care was appropriate or inappropriate. Participants described more cases of appropriate care than inappropriate care. The cases of appropriate care were diverse, but all involved care in (one or more of) five dimensions; supportive care, treatment decisions, location, the role of the patient's wish and communication. Each of these dimensions was frequently described (39-62 %). When care was inappropriate, this mostly involved inappropriate treatment decisions (69 %; especially overtreatment was frequently mentioned), and poor communication (50 %). There was considerable consistency in what was seen as (in)appropriate care across different conditions. However, especially patients suffering from other physical diseases than cancer more often received inappropriate care. From the perspective of patients and relatives, appropriate care in the last phase of life is a broad concept. Caregivers should be aware of the diversity of care needs in the last phase of life. Especially treatment decisions and communication can be improved. |
X Demographics
The data shown below were collected from the profiles of 7 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Spain | 2 | 29% |
| New Zealand | 1 | 14% |
| Unknown | 4 | 57% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 7 | 100% |
Mendeley readers
The data shown below were compiled from readership statistics for 111 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 1 | <1% |
| Unknown | 110 | 99% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 16 | 14% |
| Student > Bachelor | 15 | 14% |
| Student > Ph. D. Student | 13 | 12% |
| Researcher | 10 | 9% |
| Other | 8 | 7% |
| Other | 16 | 14% |
| Unknown | 33 | 30% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 27 | 24% |
| Medicine and Dentistry | 25 | 23% |
| Social Sciences | 9 | 8% |
| Psychology | 4 | 4% |
| Computer Science | 2 | 2% |
| Other | 9 | 8% |
| Unknown | 35 | 32% |
Attention Score in Context
This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 04 August 2017.
All research outputs
#6,619,126
of 23,566,295 outputs
Outputs from BMC Health Services Research
#3,152
of 7,845 outputs
Outputs of similar age
#96,959
of 308,354 outputs
Outputs of similar age from BMC Health Services Research
#45
of 104 outputs
Altmetric has tracked 23,566,295 research outputs across all sources so far. This one has received more attention than most of these and is in the 71st percentile.
So far Altmetric has tracked 7,845 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.9. This one has gotten more attention than average, scoring higher than 59% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 308,354 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 68% of its contemporaries.
We're also able to compare this research output to 104 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 55% of its contemporaries.