The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey

Overview of attention for article published in Orphanet Journal of Rare Diseases, December 2022

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In the top 25% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (86th percentile)
High Attention Score compared to outputs of the same age and source (91st percentile)

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Unmet Psychosocial Needs of Caregivers Impacted HRQOL for Children With Rare Diseases During the Pandemic

AJMC, 03 Feb 2023

Early in the COVID-19 pandemic, caregivers of children with rare diseases (RDs) experienced high levels of distress and had…

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