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Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? an example of priority setting partnership in very rare disorders

Overview of attention for article published in Orphanet Journal of Rare Diseases, April 2013
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (81st percentile)
  • High Attention Score compared to outputs of the same age and source (83rd percentile)

Mentioned by

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11 X users
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1 Facebook page

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59 Mendeley
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Title
Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? an example of priority setting partnership in very rare disorders
Published in
Orphanet Journal of Rare Diseases, April 2013
DOI 10.1186/1750-1172-8-61
Pubmed ID
Authors

Paula Davila-Seijo, Angela Hernández-Martín, Evanina Morcillo-Makow, Raúlde Lucas, Esther Domínguez, Natividad Romero, Eva Monrós, Marta Feito, Luis Carretero, Bea Aranegui, Ignacio García-Doval

Abstract

Dystrophic Epidermolysis Bullosa (DEB) is a rare genodermatosis (7 cases per million) that causes blisters and erosions with minor trauma in skin and mucosa, and other systemic complications. A recently updated systematic review showed that the research evidence about DEB therapies is poor. As new trials in DEB are difficult and expensive, it is important to prioritizise research that patients and clinicians consider more relevant.

X Demographics

X Demographics

The data shown below were collected from the profiles of 11 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 59 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United States 1 2%
Unknown 58 98%

Demographic breakdown

Readers by professional status Count As %
Researcher 11 19%
Student > Ph. D. Student 5 8%
Student > Bachelor 3 5%
Student > Doctoral Student 3 5%
Student > Master 3 5%
Other 8 14%
Unknown 26 44%
Readers by discipline Count As %
Medicine and Dentistry 18 31%
Nursing and Health Professions 4 7%
Biochemistry, Genetics and Molecular Biology 3 5%
Social Sciences 3 5%
Psychology 2 3%
Other 3 5%
Unknown 26 44%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 8. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 24 July 2013.
All research outputs
#4,130,032
of 22,708,120 outputs
Outputs from Orphanet Journal of Rare Diseases
#556
of 2,601 outputs
Outputs of similar age
#35,484
of 196,447 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#5
of 30 outputs
Altmetric has tracked 22,708,120 research outputs across all sources so far. Compared to these this one has done well and is in the 81st percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,601 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.5. This one has done well, scoring higher than 78% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 196,447 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 81% of its contemporaries.
We're also able to compare this research output to 30 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 83% of its contemporaries.