Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? an example of priority setting partnership in very rare disorders

Overview of attention for article published in Orphanet Journal of Rare Diseases, April 2013

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Regroupement québécois des maladies orphelines, 06 Jun 2013

Traditionnellement, ce sont les cliniciens-chercheurs, les chercheurs académiques et les compagnies pharmaceutiques qui établisse…

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