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Ethics, privacy and the legal framework governing medical data: opportunities or threats for biomedical and public health research?

Overview of attention for article published in Archives of Public Health, June 2013
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33 Mendeley
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Title
Ethics, privacy and the legal framework governing medical data: opportunities or threats for biomedical and public health research?
Published in
Archives of Public Health, June 2013
DOI 10.1186/0778-7367-71-15
Pubmed ID
Authors

Yves Coppieters, Alain Levêque

Abstract

Privacy is an important concern in any research programme that deals with personal medical data. In recent years, ethics and privacy have become key considerations when conducting any form of scientific research that involves personal data. These issues are now addressed in healthcare professional training programmes. Indeed, ethics, legal frameworks and privacy are often the subject of much confusion in discussions among healthcare professionals. They tend to group these different concepts under the same heading and delegate responsibility for "ethical" approval of their research programmes to ethics committees. Public health researchers therefore need to ask questions about how changes to legal frameworks and ethical codes governing privacy in the use of personal medical data are to be applied in practice. What types of data do these laws and codes cover? Who is involved? What restrictions and requirements apply to any research programme that involves medical data?

X Demographics

X Demographics

The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 33 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United States 1 3%
Belgium 1 3%
Saudi Arabia 1 3%
Unknown 30 91%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 7 21%
Student > Master 4 12%
Student > Postgraduate 3 9%
Researcher 3 9%
Professor 2 6%
Other 6 18%
Unknown 8 24%
Readers by discipline Count As %
Computer Science 5 15%
Medicine and Dentistry 4 12%
Agricultural and Biological Sciences 3 9%
Unspecified 2 6%
Nursing and Health Professions 2 6%
Other 8 24%
Unknown 9 27%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 03 July 2013.
All research outputs
#15,739,010
of 25,371,288 outputs
Outputs from Archives of Public Health
#648
of 1,144 outputs
Outputs of similar age
#119,241
of 209,398 outputs
Outputs of similar age from Archives of Public Health
#8
of 9 outputs
Altmetric has tracked 25,371,288 research outputs across all sources so far. This one is in the 37th percentile – i.e., 37% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,144 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.0. This one is in the 41st percentile – i.e., 41% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 209,398 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 42nd percentile – i.e., 42% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 9 others from the same source and published within six weeks on either side of this one.