Title |
The hereditary angioedema burden of illness study in Europe (HAE-BOIS-Europe): background and methodology
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Published in |
BMC Dermatology, April 2012
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DOI | 10.1186/1471-5945-12-4 |
Pubmed ID | |
Authors |
Anette Bygum, Emel Aygören-Pürsün, Teresa Caballero, Kathleen Beusterien, Shadi Gholizadeh, Patience Musingarimi, Suzanne Wait, Henrik Boysen |
Abstract |
Hereditary angioedema (HAE) is a rare but serious disease marked by swelling attacks in the extremities, face, trunk, airway, or abdominal areas that can be spontaneous or the result of trauma and other triggers. It can be life-threatening due to the risk of asphyxiation. While there have been major advancements in our understanding of the immunogenetics of HAE, there are significant gaps in the literature regarding understanding of the humanistic and economic impact of the disease, particularly in Europe. The purpose of the HAE Burden of Illness Study-Europe (HAE-BOIS-Europe), the development and methodology of which is described here, is to better understand the management and impact of HAE from the patient perspective in Europe. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Spain | 1 | <1% |
Turkey | 1 | <1% |
Unknown | 109 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 15 | 14% |
Researcher | 14 | 13% |
Student > Bachelor | 12 | 11% |
Student > Master | 9 | 8% |
Other | 9 | 8% |
Other | 26 | 23% |
Unknown | 26 | 23% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 35 | 32% |
Psychology | 9 | 8% |
Agricultural and Biological Sciences | 6 | 5% |
Nursing and Health Professions | 6 | 5% |
Biochemistry, Genetics and Molecular Biology | 5 | 5% |
Other | 17 | 15% |
Unknown | 33 | 30% |