@RareDiseases https://t.co/5FRxIhVghy Top two: Information sheets/booklets that allow new patients to gain more information & where to look for more information. Links to patient groups or patient advocates @rarediseaseuk @RareConnect #kallmannsyn
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Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism. https://t.co/Vgo8BznKtd #HealthLiteracy https://t.co/7jIQC0MGn4
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A roadmap for creating #raredisease patient education materials. https://t.co/3Y8u3anH7F
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RT @robwyer: Developing #raredisease educational materials co-created by expert clinicians and patients #patientcentric: the... https://t.…