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Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya

Overview of attention for article published in BMC Medical Ethics, October 2013
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Mentioned by

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3 X users
facebook
1 Facebook page

Citations

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36 Dimensions

Readers on

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123 Mendeley
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Title
Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya
Published in
BMC Medical Ethics, October 2013
DOI 10.1186/1472-6939-14-41
Pubmed ID
Authors

Vicki Marsh, Francis Kombe, Raymond Fitzpatrick, Thomas N Williams, Michael Parker, Sassy Molyneux

Abstract

International health research in malaria-endemic settings may include screening for sickle cell disease, given the relationship between this important genetic condition and resistance to malaria, generating questions about whether and how findings should be disclosed. The literature on disclosing genetic findings in the context of research highlights the role of community consultation in understanding and balancing ethically important issues from participants' perspectives, including social forms of benefit and harm, and the influence of access to care. To inform research practice locally, and contribute to policy more widely, this study aimed to explore the views of local residents in Kilifi County in coastal Kenya on how researchers should manage study-generated information on sickle cell disease and carrier status.

X Demographics

X Demographics

The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 123 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 1 <1%
Sierra Leone 1 <1%
Unknown 121 98%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 21 17%
Student > Master 21 17%
Researcher 16 13%
Librarian 4 3%
Other 4 3%
Other 25 20%
Unknown 32 26%
Readers by discipline Count As %
Social Sciences 24 20%
Medicine and Dentistry 16 13%
Nursing and Health Professions 13 11%
Agricultural and Biological Sciences 6 5%
Immunology and Microbiology 5 4%
Other 18 15%
Unknown 41 33%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 18 October 2013.
All research outputs
#13,318,494
of 22,725,280 outputs
Outputs from BMC Medical Ethics
#694
of 990 outputs
Outputs of similar age
#110,203
of 210,688 outputs
Outputs of similar age from BMC Medical Ethics
#7
of 14 outputs
Altmetric has tracked 22,725,280 research outputs across all sources so far. This one is in the 41st percentile – i.e., 41% of other outputs scored the same or lower than it.
So far Altmetric has tracked 990 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 14.5. This one is in the 29th percentile – i.e., 29% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 210,688 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 47th percentile – i.e., 47% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 14 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 50% of its contemporaries.