Title |
An ethics safe harbor for international genomics research?
|
---|---|
Published in |
Genome Medicine, November 2013
|
DOI | 10.1186/gm503 |
Pubmed ID | |
Authors |
Edward S Dove, Bartha M Knoppers, Ma’n H Zawati |
Abstract |
Genomics research is becoming increasingly globally connected and collaborative, contesting traditional ethical and legal boundaries between global and local research practice. As well, global data-driven genomics research holds great promise for health discoveries. Yet, paradoxically, current research ethics review systems around the world challenge potential improvements in human health from such research and thus undermine respect for research participants. Case reports illustrate that the current system is costly, fragmented, inefficient, inadequate, and inconsistent. There is an urgent need to improve the governance system of ethics review to enable secure and seamless genomic and clinical data sharing across jurisdictions. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 3 | 27% |
United Kingdom | 2 | 18% |
Bosnia and Herzegovina | 1 | 9% |
China | 1 | 9% |
Canada | 1 | 9% |
Unknown | 3 | 27% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 5 | 45% |
Scientists | 5 | 45% |
Practitioners (doctors, other healthcare professionals) | 1 | 9% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 2 | 3% |
Sierra Leone | 1 | 1% |
United Kingdom | 1 | 1% |
Unknown | 64 | 94% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 14 | 21% |
Student > Ph. D. Student | 10 | 15% |
Student > Master | 8 | 12% |
Professor > Associate Professor | 6 | 9% |
Student > Postgraduate | 4 | 6% |
Other | 13 | 19% |
Unknown | 13 | 19% |
Readers by discipline | Count | As % |
---|---|---|
Social Sciences | 14 | 21% |
Medicine and Dentistry | 13 | 19% |
Business, Management and Accounting | 3 | 4% |
Nursing and Health Professions | 3 | 4% |
Agricultural and Biological Sciences | 3 | 4% |
Other | 17 | 25% |
Unknown | 15 | 22% |