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Feasibility of the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) with a visual impairment: a pilot study

Overview of attention for article published in Health and Quality of Life Outcomes, May 2017
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Title
Feasibility of the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) with a visual impairment: a pilot study
Published in
Health and Quality of Life Outcomes, May 2017
DOI 10.1186/s12955-017-0677-x
Pubmed ID
Authors

Ellen Bernadette Maria Elsman, Ruth Marie Antoinette van Nispen, Gerardus Hermanus Maria Bartholomeu van Rens

Abstract

Having a visual impairment affects quality of life, daily functioning and participation. To assess rehabilitation needs of visually impaired children and young adults, the Participation and Activity Inventory for Children and Youth (PAI-CY) and Young Adults (PAI-YA) were developed. The PAI-CY comprises four questionnaires for different age categories: 0-2 years, 3-6 years, 7-12 years and 13-17 years. This pilot study assesses the feasibility and acceptability of the PAI-CY and PAI-YA, and the relevance of the content of the questionnaires. In addition to the regular admission procedure, the PAI-CY and PAI-YA were completed by 30 participants (six per questionnaire). For the PAI-CY, parents completed the questionnaire online prior to admission. From age 7 years onwards, children completed the questionnaire face-to-face with a rehabilitation professional during the admission procedure. Young adults completed the PAI-YA online. Subsequently, participants and professionals administered an evaluation form. Overall, 85% of the parents rated all aspects of the PAI-CY neutral to positive, whereas 100% of all children and young adults were neutral to positive on all aspects, except for the duration to complete. The main criticism of professionals was that they were unable to identify actual rehabilitation needs using the questionnaires. Minor adjustments were recommended for the content of questions. Parents, children and young adults were mostly satisfied with the questionnaires, however, professionals suggested some changes. The adaptations made should improve satisfaction with content, clarification of questions, and satisfaction with the questionnaires in compiling a rehabilitation plan. Although face and content validity has been optimized, a larger field study is taking place to further develop and evaluate the questionnaires.

Twitter Demographics

The data shown below were collected from the profile of 1 tweeter who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 35 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 35 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 5 14%
Researcher 4 11%
Student > Ph. D. Student 4 11%
Student > Master 4 11%
Other 4 11%
Other 4 11%
Unknown 10 29%
Readers by discipline Count As %
Nursing and Health Professions 8 23%
Computer Science 3 9%
Medicine and Dentistry 2 6%
Biochemistry, Genetics and Molecular Biology 2 6%
Psychology 2 6%
Other 5 14%
Unknown 13 37%

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 11 May 2017.
All research outputs
#11,778,597
of 15,442,255 outputs
Outputs from Health and Quality of Life Outcomes
#1,044
of 1,660 outputs
Outputs of similar age
#180,244
of 267,244 outputs
Outputs of similar age from Health and Quality of Life Outcomes
#1
of 1 outputs
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