Title |
Patient-reported disease knowledge and educational needs in Lynch syndrome: findings of an interactive multidisciplinary patient conference
|
---|---|
Published in |
Hereditary Cancer in Clinical Practice, February 2014
|
DOI | 10.1186/1897-4287-12-1 |
Pubmed ID | |
Authors |
Sarah A Bannon, Maureen Mork, Eduardo Vilar, Susan K Peterson, Karen Lu, Patrick M Lynch, Miguel A Rodriguez-Bigas, YiQian Nancy You |
Abstract |
Patients with Lynch Syndrome, the most common hereditary colorectal cancer syndrome, benefit from genetic education and family counseling regarding diagnostic testing and cancer surveillance/prevention recommendations. Although genetic counseling is currently the most common venue where such education and counseling takes place, little is known about the level of disease knowledge and education needs as directly reported by patients and families with Lynch Syndrome. Furthermore, experiences with forums for larger-scale knowledge transfer have been limited in the current literature. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Canada | 1 | 20% |
United States | 1 | 20% |
India | 1 | 20% |
Ireland | 1 | 20% |
Unknown | 1 | 20% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 3 | 60% |
Practitioners (doctors, other healthcare professionals) | 1 | 20% |
Scientists | 1 | 20% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | 2% |
Unknown | 55 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 14 | 25% |
Researcher | 6 | 11% |
Student > Ph. D. Student | 6 | 11% |
Student > Bachelor | 5 | 9% |
Student > Doctoral Student | 4 | 7% |
Other | 9 | 16% |
Unknown | 12 | 21% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 17 | 30% |
Biochemistry, Genetics and Molecular Biology | 9 | 16% |
Agricultural and Biological Sciences | 7 | 13% |
Nursing and Health Professions | 5 | 9% |
Computer Science | 1 | 2% |
Other | 4 | 7% |
Unknown | 13 | 23% |