Title |
Using a social marketing framework to evaluate recruitment of a prospective study of genetic counseling and testing for the deaf community
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Published in |
BMC Medical Research Methodology, November 2013
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DOI | 10.1186/1471-2288-13-145 |
Pubmed ID | |
Authors |
Yoko Kobayashi, Patrick Boudreault, Karin Hill, Janet S Sinsheimer, Christina GS Palmer |
Abstract |
Recruiting deaf and hard-of-hearing participants, particularly sign language-users, for genetics health service research is challenging due to communication barriers, mistrust toward genetics, and researchers' unfamiliarity with deaf people. Feelings of social exclusion and lack of social cohesion between researchers and the Deaf community are factors to consider. Social marketing is effective for recruiting hard-to-reach populations because it fosters social inclusion and cohesion by focusing on the targeted audience's needs. For the deaf population this includes recognizing their cultural and linguistic diversity, their geography, and their systems for information exchange. Here we use concepts and language from social marketing to evaluate our effectiveness to engage a U.S. deaf population in a prospective, longitudinal genetic counseling and testing study. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 1 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Practitioners (doctors, other healthcare professionals) | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 84 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 16 | 19% |
Student > Ph. D. Student | 12 | 14% |
Student > Bachelor | 7 | 8% |
Researcher | 6 | 7% |
Student > Doctoral Student | 6 | 7% |
Other | 17 | 20% |
Unknown | 20 | 24% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 16 | 19% |
Psychology | 9 | 11% |
Social Sciences | 7 | 8% |
Nursing and Health Professions | 7 | 8% |
Business, Management and Accounting | 4 | 5% |
Other | 20 | 24% |
Unknown | 21 | 25% |