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The European Cystic Fibrosis Society Patient Registry: valuable lessons learned on how to sustain a disease registry

Overview of attention for article published in Orphanet Journal of Rare Diseases, June 2014
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (88th percentile)
  • High Attention Score compared to outputs of the same age and source (87th percentile)

Mentioned by

news
1 news outlet
twitter
10 X users

Citations

dimensions_citation
70 Dimensions

Readers on

mendeley
63 Mendeley
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Title
The European Cystic Fibrosis Society Patient Registry: valuable lessons learned on how to sustain a disease registry
Published in
Orphanet Journal of Rare Diseases, June 2014
DOI 10.1186/1750-1172-9-81
Pubmed ID
Authors

Laura Viviani, Anna Zolin, Anil Mehta, Hanne Vebert Olesen

X Demographics

X Demographics

The data shown below were collected from the profiles of 10 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 63 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 2%
Unknown 62 98%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 10 16%
Researcher 6 10%
Student > Bachelor 6 10%
Student > Doctoral Student 5 8%
Other 4 6%
Other 15 24%
Unknown 17 27%
Readers by discipline Count As %
Medicine and Dentistry 21 33%
Nursing and Health Professions 5 8%
Agricultural and Biological Sciences 2 3%
Immunology and Microbiology 2 3%
Computer Science 2 3%
Other 13 21%
Unknown 18 29%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 13. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 29 February 2016.
All research outputs
#2,776,459
of 26,017,215 outputs
Outputs from Orphanet Journal of Rare Diseases
#352
of 3,178 outputs
Outputs of similar age
#26,954
of 247,289 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#6
of 49 outputs
Altmetric has tracked 26,017,215 research outputs across all sources so far. Compared to these this one has done well and is in the 88th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,178 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.3. This one has done well, scoring higher than 88% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 247,289 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 88% of its contemporaries.
We're also able to compare this research output to 49 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 87% of its contemporaries.