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Identifying the unmet health needs of patients with congenital hypogonadotropic hypogonadism using a web-based needs assessment: implications for online interventions and peer-to-peer support

Overview of attention for article published in Orphanet Journal of Rare Diseases, June 2014
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (86th percentile)
  • Good Attention Score compared to outputs of the same age and source (77th percentile)

Mentioned by

news
1 news outlet
twitter
1 X user
facebook
3 Facebook pages
reddit
1 Redditor

Readers on

mendeley
136 Mendeley
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Title
Identifying the unmet health needs of patients with congenital hypogonadotropic hypogonadism using a web-based needs assessment: implications for online interventions and peer-to-peer support
Published in
Orphanet Journal of Rare Diseases, June 2014
DOI 10.1186/1750-1172-9-83
Pubmed ID
Authors

Andrew A Dwyer, Richard Quinton, Diane Morin, Nelly Pitteloud

Abstract

Patients with rare diseases such as congenital hypogonadotropic hypogonadism (CHH) are dispersed, often challenged to find specialized care and face other health disparities. The internet has the potential to reach a wide audience of rare disease patients and can help connect patients and specialists. Therefore, this study aimed to: (i) determine if web-based platforms could be effectively used to conduct an online needs assessment of dispersed CHH patients; (ii) identify the unmet health and informational needs of CHH patients and (iii) assess patient acceptability regarding patient-centered, web-based interventions to bridge shortfalls in care.

X Demographics

X Demographics

The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 136 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 <1%
United States 1 <1%
India 1 <1%
Switzerland 1 <1%
Unknown 132 97%

Demographic breakdown

Readers by professional status Count As %
Student > Master 21 15%
Researcher 15 11%
Student > Postgraduate 11 8%
Student > Ph. D. Student 11 8%
Student > Doctoral Student 10 7%
Other 30 22%
Unknown 38 28%
Readers by discipline Count As %
Medicine and Dentistry 28 21%
Nursing and Health Professions 12 9%
Psychology 12 9%
Business, Management and Accounting 8 6%
Social Sciences 7 5%
Other 23 17%
Unknown 46 34%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 11. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 15 February 2017.
All research outputs
#3,274,690
of 25,374,647 outputs
Outputs from Orphanet Journal of Rare Diseases
#457
of 3,105 outputs
Outputs of similar age
#31,405
of 243,404 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#10
of 49 outputs
Altmetric has tracked 25,374,647 research outputs across all sources so far. Compared to these this one has done well and is in the 86th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,105 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has done well, scoring higher than 84% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 243,404 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 86% of its contemporaries.
We're also able to compare this research output to 49 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 77% of its contemporaries.