Title |
Developing a provisional, international Minimal Dataset for Juvenile Dermatomyositis: for use in clinical practice to inform research
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Published in |
Pediatric Rheumatology, July 2014
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DOI | 10.1186/1546-0096-12-31 |
Pubmed ID | |
Authors |
Liza J McCann, Katie Arnold, Clarissa A Pilkington, Adam M Huber, Angelo Ravelli, Laura Beard, Michael W Beresford, Lucy R Wedderburn, the UK Juvenile Dermatomyositis Research Group (JDRG) |
Abstract |
Juvenile dermatomyositis (JDM) is a rare but severe autoimmune inflammatory myositis of childhood. International collaboration is essential in order to undertake clinical trials, understand the disease and improve long-term outcome. The aim of this study was to propose from existing collaborative initiatives a preliminary minimal dataset for JDM. This will form the basis of the future development of an international consensus-approved minimum core dataset to be used both in clinical care and inform research, allowing integration of data between centres. |
X Demographics
Geographical breakdown
Country | Count | As % |
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United States | 2 | 100% |
Demographic breakdown
Type | Count | As % |
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Members of the public | 2 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
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Singapore | 1 | 2% |
Canada | 1 | 2% |
Unknown | 43 | 96% |
Demographic breakdown
Readers by professional status | Count | As % |
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Student > Ph. D. Student | 9 | 20% |
Researcher | 6 | 13% |
Unspecified | 5 | 11% |
Student > Bachelor | 5 | 11% |
Other | 4 | 9% |
Other | 12 | 27% |
Unknown | 4 | 9% |
Readers by discipline | Count | As % |
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Medicine and Dentistry | 19 | 42% |
Unspecified | 5 | 11% |
Agricultural and Biological Sciences | 4 | 9% |
Nursing and Health Professions | 2 | 4% |
Economics, Econometrics and Finance | 2 | 4% |
Other | 6 | 13% |
Unknown | 7 | 16% |