Title |
Health related quality of life of children and adolescents with congenital adrenal hyperplasia in Brazil
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Published in |
Health and Quality of Life Outcomes, August 2014
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DOI | 10.1186/s12955-014-0107-2 |
Pubmed ID | |
Authors |
Daniel Luis Schueftan Gilban, Paulo Alonso Garcia Alves Junior, Izabel Calland Ricarte Beserra |
Abstract |
Congenital Adrenal Hyperplasia (CAH) is an endocrine disorder characterized by enzymatic deficiency in adrenal steroidogenesis, leading to adrenal insufficiency and hyperandrogenism. Patients need continuous hormone replacement therapy, but adequate control has proven challenging, exposing patients to undesirable consequences of both disease and treatment. Objective: To evaluate the health related quality of life (HRQoL) of children and adolescents with CAH due to 21-hydroxylase deficiency. Methods: In an analytical study, generic questionnaires, validated and translated versions, Pediatric Quality of Life Inventory 4.0 (for self-assessment of patients) and Child Health Questionnaire - PF50 (for parents) were applied and mean scores were analyzed with Student¿s t-test. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Italy | 1 | 1% |
Unknown | 66 | 99% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 16 | 24% |
Student > Bachelor | 7 | 10% |
Student > Postgraduate | 6 | 9% |
Student > Doctoral Student | 4 | 6% |
Researcher | 3 | 4% |
Other | 7 | 10% |
Unknown | 24 | 36% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 26 | 39% |
Nursing and Health Professions | 6 | 9% |
Psychology | 4 | 6% |
Biochemistry, Genetics and Molecular Biology | 2 | 3% |
Social Sciences | 2 | 3% |
Other | 2 | 3% |
Unknown | 25 | 37% |