Title |
A failed attempt to conduct an individual patient data meta-analysis
|
---|---|
Published in |
Systematic Reviews, September 2014
|
DOI | 10.1186/2046-4053-3-97 |
Pubmed ID | |
Authors |
Gerald J Jaspers, Pieter LJ Degraeuwe |
Abstract |
A study-level meta-analysis has shown that proton magnetic resonance spectroscopy is a promising prognostic marker in neonatal hypoxic-ischemic encephalopathy. An individual patient data meta-analysis could yield a prognostic tool with improved accuracy enabling well-founded clinical decisions. Our request to share patient data remained unanswered by five out of 18 research groups. Another four declined collaboration for various reasons, including own reanalysis of the data, and lack of parental consent. With less than 40% of the individual patient data available, we refrained from pursuing the proposed study. As future patients may benefit from it, policies mandating data sharing should be introduced. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 7 | 30% |
United Kingdom | 5 | 22% |
France | 2 | 9% |
Colombia | 2 | 9% |
Canada | 1 | 4% |
Australia | 1 | 4% |
Maldives | 1 | 4% |
Unknown | 4 | 17% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 17 | 74% |
Scientists | 5 | 22% |
Science communicators (journalists, bloggers, editors) | 1 | 4% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United Kingdom | 1 | 4% |
Unknown | 26 | 96% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 6 | 22% |
Other | 5 | 19% |
Student > Bachelor | 4 | 15% |
Researcher | 3 | 11% |
Student > Ph. D. Student | 3 | 11% |
Other | 2 | 7% |
Unknown | 4 | 15% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 9 | 33% |
Nursing and Health Professions | 3 | 11% |
Biochemistry, Genetics and Molecular Biology | 2 | 7% |
Agricultural and Biological Sciences | 2 | 7% |
Business, Management and Accounting | 1 | 4% |
Other | 5 | 19% |
Unknown | 5 | 19% |