Title |
Rethinking the therapeutic misconception: social justice, patient advocacy, and cancer clinical trial recruitment in the US safety net
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Published in |
BMC Medical Ethics, September 2014
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DOI | 10.1186/1472-6939-15-68 |
Pubmed ID | |
Authors |
Nancy J Burke |
Abstract |
Approximately 20% of adult cancer patients are eligible to participate in a clinical trial, but only 2.5-9% do so. Accrual is even less for minority and medically underserved populations. As a result, critical life-saving treatments and quality of life services developed from research studies may not address their needs. This study questions the utility of the bioethical concern with therapeutic misconception (TM), a misconception that occurs when research subjects fail to distinguish between clinical research and ordinary treatment, and therefore attribute therapeutic intent to research procedures in the safety net setting. This paper provides ethnographic insight into the ways in which research is discussed and related to standard treatment. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 3 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Scientists | 1 | 33% |
Practitioners (doctors, other healthcare professionals) | 1 | 33% |
Members of the public | 1 | 33% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 97 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 16 | 16% |
Researcher | 12 | 12% |
Student > Master | 11 | 11% |
Student > Doctoral Student | 6 | 6% |
Other | 6 | 6% |
Other | 16 | 16% |
Unknown | 30 | 31% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 19 | 20% |
Nursing and Health Professions | 18 | 19% |
Social Sciences | 10 | 10% |
Psychology | 6 | 6% |
Neuroscience | 3 | 3% |
Other | 11 | 11% |
Unknown | 30 | 31% |