Title |
Development of a patient decision aid for people with refractory angina: protocol for a three-phase pilot study
|
---|---|
Published in |
Health and Quality of Life Outcomes, June 2014
|
DOI | 10.1186/1477-7525-12-93 |
Pubmed ID | |
Authors |
Michael Hugh McGillion, Sandra Lee Carroll, Kelly Metcalfe, Heather Mary Arthur, Joseph Charles Victor, Robert McKelvie, Etienne Marc Jolicoeur, Marie-Gabrielle Lessard, James Stone, Nelson Svorkdal, John George Hanlon, Ada Andrade, Joel Niznick, Louise Malysh, William McDonald, Bonnie Stevens, Peter Coyte, Dawn Stacey |
Abstract |
Refractory angina is a severe chronic disease, defined as angina which cannot be controlled by usual treatments for heart disease. This disease is frightening, debilitating, and difficult to manage. Many people suffering refractory have inadequate pain relief, continually revisit emergency departments for help, undergo repeated cardiac investigations, and struggle with obtaining appropriate care. There is no clear framework to help people understand the risks and benefits of available treatment options in Canada. Some treatments for refractory angina are invasive, while others are not covered by provincial health insurance plans. Effective care for refractory angina sufferers in Canada is critically underdeveloped; it is important that healthcare professionals and refractory angina sufferers alike understand the treatment options and their implications. This proposal builds on the recent Canadian practice guidelines for the management of refractory angina. We propose to develop a decision support tool in order to help people suffering from refractory angina make well-informed decisions about their healthcare and reduce their uncertainty about treatment options. |
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Geographical breakdown
Country | Count | As % |
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Netherlands | 1 | 20% |
United States | 1 | 20% |
Unknown | 3 | 60% |
Demographic breakdown
Type | Count | As % |
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Members of the public | 4 | 80% |
Science communicators (journalists, bloggers, editors) | 1 | 20% |
Mendeley readers
Geographical breakdown
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Spain | 1 | 2% |
Unknown | 56 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
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Student > Master | 11 | 19% |
Researcher | 8 | 14% |
Student > Bachelor | 7 | 12% |
Student > Doctoral Student | 4 | 7% |
Professor | 3 | 5% |
Other | 11 | 19% |
Unknown | 13 | 23% |
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Psychology | 6 | 11% |
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Biochemistry, Genetics and Molecular Biology | 3 | 5% |
Other | 15 | 26% |
Unknown | 14 | 25% |