Title |
Consenting for current genetic research: is Canadian practice adequate?
|
---|---|
Published in |
BMC Medical Ethics, November 2014
|
DOI | 10.1186/1472-6939-15-80 |
Pubmed ID | |
Authors |
Iris Jaitovich Groisman, Nathalie Egalite, Beatrice Godard |
Abstract |
In order to ensure an adequate and ongoing protection of individuals participating in scientific research, the impacts of new biomedical technologies, such as Next Generation Sequencing (NGS), need to be assessed. In this light, a necessary reexamination of the ethical and legal structures framing research could lead to requisite changes in informed consent modalities. This would have implications for Institutional Review Boards (IRBs), who bear the responsibility of guaranteeing that participants are verifiably informed, and in sufficient detail, to understand the reality of genetic research as it is practiced now. Current literature allowed the identification of key emergent themes related to the consent process when NGS was used in a research setting. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
France | 1 | 50% |
India | 1 | 50% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Scientists | 1 | 50% |
Members of the public | 1 | 50% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 39 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 5 | 13% |
Student > Master | 5 | 13% |
Librarian | 3 | 8% |
Student > Ph. D. Student | 3 | 8% |
Student > Bachelor | 3 | 8% |
Other | 9 | 23% |
Unknown | 11 | 28% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 9 | 23% |
Social Sciences | 3 | 8% |
Nursing and Health Professions | 3 | 8% |
Agricultural and Biological Sciences | 3 | 8% |
Computer Science | 2 | 5% |
Other | 7 | 18% |
Unknown | 12 | 31% |