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Caring for a cerebral palsy child: a caregivers perspective at the University Teaching Hospital, Zambia

Overview of attention for article published in BMC Research Notes, December 2017
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Title
Caring for a cerebral palsy child: a caregivers perspective at the University Teaching Hospital, Zambia
Published in
BMC Research Notes, December 2017
DOI 10.1186/s13104-017-3011-0
Pubmed ID
Authors

Brian Chanda Chiluba, Geoffrey Moyo

Abstract

Cerebral palsy is a major cause of disability and most survivors are left with residual disability and are dependent on parents/caregivers for essential care. This study aimed to determine the experiences of parents/caregivers of cerebral palsy children receiving out-patient physiotherapy. A concurrent mixed methods was used to collect data in the present study. The modified caregiver strain index (MCSI-13) was used to detect Disturbed sleep, Inconvenient/Tiresome, Physical strain, Confining, Family changes, Changes in personal plan, Other demands, Emotional adjustments, Upsetting behavior, Patient has changed, Work adjustments, Financial Strain and Feeling Overwhelmed (strain morbidity) in 25 parents/caregivers of CP children. A purposive sample of 25 parents/caregivers was selected for both the quantitative part and qualitative part of the study. The study was conducted at Community Based Intervention Association Out-patients at the University Teaching Hospital in Lusaka, Zambia. The MCSI was used to collect quantitative data and in-depth interviews provided the qualitative data. The median age of the participants was 33.6 years and a range of 27 to 50 years. The study sample consisted of more females (92%) than males (8%). being overwhelmed and inconvenient/tiresome followed by family adjustments and work adjustment 72 and 68% respectively for each were the experiences mostly highlighted by the parents/caregivers in this study. When it came to the needs of the parents/caregivers more than half of them needed help with caring. To this effect participants expressed their perception; one mother had this to say, "…I need someone to help in caring. Sometimes I need to do some other things but can't, because if I do then no one will remain with the child…". This study point out to some evidence that the burden inflicted on those caring for children with cerebral palsy should be addressed if the quality of care for those with cerebral palsy is to be improved.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 180 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 180 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 29 16%
Student > Bachelor 23 13%
Researcher 12 7%
Student > Doctoral Student 9 5%
Student > Ph. D. Student 8 4%
Other 31 17%
Unknown 68 38%
Readers by discipline Count As %
Nursing and Health Professions 42 23%
Medicine and Dentistry 26 14%
Social Sciences 5 3%
Economics, Econometrics and Finance 4 2%
Neuroscience 4 2%
Other 24 13%
Unknown 75 42%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 19 December 2017.
All research outputs
#15,486,175
of 23,012,811 outputs
Outputs from BMC Research Notes
#2,334
of 4,283 outputs
Outputs of similar age
#266,840
of 439,775 outputs
Outputs of similar age from BMC Research Notes
#96
of 197 outputs
Altmetric has tracked 23,012,811 research outputs across all sources so far. This one is in the 22nd percentile – i.e., 22% of other outputs scored the same or lower than it.
So far Altmetric has tracked 4,283 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.6. This one is in the 33rd percentile – i.e., 33% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 439,775 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 30th percentile – i.e., 30% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 197 others from the same source and published within six weeks on either side of this one. This one is in the 41st percentile – i.e., 41% of its contemporaries scored the same or lower than it.