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A web-based psychological support program for caregivers of children with cystic fibrosis: a pilot study

Overview of attention for article published in Health and Quality of Life Outcomes, February 2015
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3 X users
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1 Facebook page

Citations

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29 Dimensions

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155 Mendeley
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Title
A web-based psychological support program for caregivers of children with cystic fibrosis: a pilot study
Published in
Health and Quality of Life Outcomes, February 2015
DOI 10.1186/s12955-015-0211-y
Pubmed ID
Authors

Astrid Fidika, Marion Herle, Christine Lehmann, Christa Weiss, Christine Knaevelsrud, Lutz Goldbeck

Abstract

BackgroundParents caring for a child with Cystic Fibrosis (CF) are at high risk for psychological distress and have limited access to psychological care. Therefore, a web-based psychological support program for severely distressed parents of children with CF (WEP-CARE) was developed and evaluated for its feasibility and efficacy.MethodsA clinical expert panel developed WEP-CARE based on principles of cognitive-behavioral therapy. This web-based writing therapy comprises nine sessions, tailored for the specific needs of caregivers. The pilot study was conducted as a single-group intervention with pre-post-follow-up design. Out of 31 participants, 23 parents completed the intervention (21 female; mean age 37 years; SD¿=¿6.2 years, range 25 ¿ 48 years). Psychological symptoms and quality of life were assessed online by self-report measures at pre and post treatment and followed up 3 month later.ResultsOn average, the caregivers¿ symptoms of anxiety decreased statistically significant and clinical relevant about five points from an elevated (M¿=¿11.4; SD =2.6) to a normal level (M¿=¿6.7; SD¿=¿2.6; p¿<¿0.001) between pre and post treatment. Fear of disease progression (p¿<¿0.001) and symptoms of depression (p¿=¿0.02) significantly decreased as well. Quality of life significantly improved (p¿=¿0.01). The effects were maintained at the 3-months follow-up assessment.ConclusionsWEP-CARE is feasible and promising regarding its efficacy to improve parental mental health and quality of life.

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The data shown below were collected from the profiles of 3 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 155 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 155 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 27 17%
Student > Ph. D. Student 23 15%
Student > Bachelor 16 10%
Researcher 11 7%
Student > Postgraduate 9 6%
Other 35 23%
Unknown 34 22%
Readers by discipline Count As %
Psychology 51 33%
Medicine and Dentistry 21 14%
Nursing and Health Professions 18 12%
Social Sciences 9 6%
Computer Science 2 1%
Other 10 6%
Unknown 44 28%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 2. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 06 December 2015.
All research outputs
#16,721,717
of 25,374,647 outputs
Outputs from Health and Quality of Life Outcomes
#1,372
of 2,297 outputs
Outputs of similar age
#211,332
of 360,581 outputs
Outputs of similar age from Health and Quality of Life Outcomes
#19
of 32 outputs
Altmetric has tracked 25,374,647 research outputs across all sources so far. This one is in the 32nd percentile – i.e., 32% of other outputs scored the same or lower than it.
So far Altmetric has tracked 2,297 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 6.5. This one is in the 37th percentile – i.e., 37% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 360,581 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 38th percentile – i.e., 38% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 32 others from the same source and published within six weeks on either side of this one. This one is in the 34th percentile – i.e., 34% of its contemporaries scored the same or lower than it.