↓ Skip to main content

Quality of life in caregivers of children and adolescents with Osteogenesis Imperfecta

Overview of attention for article published in Health and Quality of Life Outcomes, April 2015
Altmetric Badge

Mentioned by

twitter
1 X user
facebook
1 Facebook page

Readers on

mendeley
102 Mendeley
You are seeing a free-to-access but limited selection of the activity Altmetric has collected about this research output. Click here to find out more.
Title
Quality of life in caregivers of children and adolescents with Osteogenesis Imperfecta
Published in
Health and Quality of Life Outcomes, April 2015
DOI 10.1186/s12955-015-0226-4
Pubmed ID
Authors

Ana Paula Vanz, Têmis M Félix, Neusa Sica da Rocha, Ida V D Schwartz

Abstract

Osteogenesis imperfecta (OI) is a group of genetic disorders of collagen biosynthesis, characterized by low bone density leading to fractures. Most patients exhibit functional impairment and require the aid of a caregiver. The aim of this study is to assess the quality of life (QoL) of caregivers of patients with OI. In this cross-sectional study, a convenience sampling strategy was used to enroll adult caregivers of children and adolescents with OI who attended a referral center in southern Brazil. The WHOQOL-BREF instrument was used to assess QoL. Twenty-four caregivers of 27 patients (10 with type I, 4 with type III, and 13 with type IV OI) were included in the study. Eighteen caregivers were the patients' mothers, two had OI, and 22 cared for only one patient. Mean WHOQOL-BREF scores were 14.59 for the physical health domain, 13.80 for the psychological domain, 15.19 for the social relationships domain, and 12.87 for the environmental domain; the mean total QoL score was 14.16. QoL scores did not differ significantly according to patients' OI type or number of fractures. Economic status was not correlated significantly with QoL scores. QoL appears to be impaired in caregivers of patients with OI. Additional studies are required to confirm these findings and to ascertain which factors account for this phenomenon.

X Demographics

X Demographics

The data shown below were collected from the profile of 1 X user who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 102 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 102 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 12 12%
Student > Bachelor 11 11%
Other 9 9%
Student > Postgraduate 9 9%
Researcher 8 8%
Other 21 21%
Unknown 32 31%
Readers by discipline Count As %
Medicine and Dentistry 19 19%
Nursing and Health Professions 15 15%
Psychology 12 12%
Social Sciences 4 4%
Agricultural and Biological Sciences 4 4%
Other 9 9%
Unknown 39 38%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 01 April 2015.
All research outputs
#18,405,265
of 22,797,621 outputs
Outputs from Health and Quality of Life Outcomes
#1,670
of 2,159 outputs
Outputs of similar age
#193,622
of 264,677 outputs
Outputs of similar age from Health and Quality of Life Outcomes
#19
of 28 outputs
Altmetric has tracked 22,797,621 research outputs across all sources so far. This one is in the 11th percentile – i.e., 11% of other outputs scored the same or lower than it.
So far Altmetric has tracked 2,159 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.4. This one is in the 8th percentile – i.e., 8% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 264,677 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 15th percentile – i.e., 15% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 28 others from the same source and published within six weeks on either side of this one. This one is in the 7th percentile – i.e., 7% of its contemporaries scored the same or lower than it.