Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure

Overview of attention for article published in Human Genomics, April 2018

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In the top 25% of all research outputs scored by Altmetric
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@Kaumee 💯 couldn't agree more. I had the privilege of being involved in this governance project, which tried to emphasise the 'public' in public access https://t.co/nMSj82gt5h

13 Jul 2023

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@gedankenstuecke @DanLammerhirt @madprime happy to discuss my involvement in METADAC https://t.co/nMSj82gt5h and attempts to develop "participant-centred decision-making" as part of a data access committee

18 Aug 2021

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Before it had its funding withdrawn this is something we were addressing through METADAC, developing what we called "participant-centred decision-making" https://t.co/nMSj82gt5h

14 May 2021

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@HastingsJ123 Fascinating. With other @metadac members we tried to describe 'participant-centred decision-making' in data governance - https://t.co/nMSj82gt5h - has @GenomicsEngland published/plans to publish anything like this?

10 Dec 2020

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