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Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel

Overview of attention for article published in BMC Medical Ethics, September 2011
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (84th percentile)
  • Good Attention Score compared to outputs of the same age and source (71st percentile)

Mentioned by

blogs
1 blog
twitter
2 X users

Citations

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27 Dimensions

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54 Mendeley
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Title
Secondary uses and the governance of de-identified data: Lessons from the human genome diversity panel
Published in
BMC Medical Ethics, September 2011
DOI 10.1186/1472-6939-12-16
Pubmed ID
Authors

Stephanie M Fullerton, Sandra S-J Lee

Abstract

Recent changes to regulatory guidance in the US and Europe have complicated oversight of secondary research by rendering most uses of de-identified data exempt from human subjects oversight. To identify the implications of such guidelines for harms to participants and communities, this paper explores the secondary uses of one de-identified DNA sample collection with limited oversight: the Human Genome Diversity Project (HGDP)-Centre d'Etude du Polymorphisme Humain, Fondation Jean Dausset (CEPH) Human Genome Diversity Panel.

X Demographics

X Demographics

The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 54 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Turkey 1 2%
Austria 1 2%
Unknown 52 96%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 9 17%
Researcher 8 15%
Student > Master 5 9%
Student > Doctoral Student 5 9%
Professor 4 7%
Other 16 30%
Unknown 7 13%
Readers by discipline Count As %
Social Sciences 11 20%
Medicine and Dentistry 10 19%
Agricultural and Biological Sciences 10 19%
Nursing and Health Professions 3 6%
Arts and Humanities 3 6%
Other 9 17%
Unknown 8 15%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 9. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 22 October 2011.
All research outputs
#3,777,608
of 23,577,654 outputs
Outputs from BMC Medical Ethics
#392
of 1,013 outputs
Outputs of similar age
#20,690
of 132,765 outputs
Outputs of similar age from BMC Medical Ethics
#2
of 7 outputs
Altmetric has tracked 23,577,654 research outputs across all sources so far. Compared to these this one has done well and is in the 83rd percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,013 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 14.9. This one has gotten more attention than average, scoring higher than 61% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 132,765 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 84% of its contemporaries.
We're also able to compare this research output to 7 others from the same source and published within six weeks on either side of this one. This one has scored higher than 5 of them.