We did a bunch of work on appropriate health outocmes that included voices of children/young people and parent carers with @CDC_tweets as well as professionals. The synthesis of those finding is here https://t.co/O4j4EwKkoM 3/ https://t.co/pbLcYfsPpj
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In earlier research we proposed a suite of key outcome domains for children with neurodisability: communication, emotional wellbeing, pain, sleep, mobility, self-care, independence, mental health, community and social life, behaviour, toileting, and safety
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1/2 Our paper 'Meaningful health outcomes for paediatric neurodisability' has been highly accessed @BioMedCentral http://t.co/KPJdT5WJqa
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Meaningful health outcomes for child neurodisability: appropriateness of patient reported measures http://t.co/38knCOD5EZ @COMETinitiative