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Population attitudes towards research use of health care registries: a population-based survey in Finland

Overview of attention for article published in BMC Medical Ethics, July 2015
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Title
Population attitudes towards research use of health care registries: a population-based survey in Finland
Published in
BMC Medical Ethics, July 2015
DOI 10.1186/s12910-015-0040-x
Pubmed ID
Authors

Katariina Eloranta, Anssi Auvinen

Abstract

Register-based research can provide important and valuable contributions to public health research, but involves ethical issues concerning the balance of public health benefits and individual autonomy. This study aimed to describe the opinions of the Finnish public about these issues. Mail survey questionnaire sent to a random sample of 1000 Finns. Participation proportion was 42 %, with 258 women and 160 men. The majority of the participants (61 %) were willing to provide their identifiable health information for research. Almost half of the participants (48 %) would, nevertheless, like to be informed when their information is used. A third (30 %) indicated no need for informed consent in register-based research, a similar proportion felt it should be obtained for every study, and 40 % thought it necessary in some situations, such as studies addressing a sensitive study topic. As for the best policy for obtaining consent, the majority (86 %) favoured broader consent methods: one consent covering a certain register or a research topic. Half of the participants (55 %) desired a required ethical evaluation from register-based research addressing a sensitive issue. Privacy protection was the most common concern for register-based research. More than half of the participants were either content with the current Finnish laws concerning register-based research or wanted to liberalize them to advance research. The Finnish public is supportive of register-based research, but the requirement for informed consent divides opinions and many would at least like to be informed of the research use of their information.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 24 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 1 4%
Unknown 23 96%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 4 17%
Student > Bachelor 2 8%
Student > Master 2 8%
Student > Postgraduate 2 8%
Researcher 2 8%
Other 2 8%
Unknown 10 42%
Readers by discipline Count As %
Computer Science 4 17%
Social Sciences 3 13%
Nursing and Health Professions 2 8%
Biochemistry, Genetics and Molecular Biology 1 4%
Psychology 1 4%
Other 1 4%
Unknown 12 50%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 22 July 2015.
All research outputs
#13,903,378
of 23,577,761 outputs
Outputs from BMC Medical Ethics
#723
of 1,016 outputs
Outputs of similar age
#112,404
of 235,937 outputs
Outputs of similar age from BMC Medical Ethics
#11
of 15 outputs
Altmetric has tracked 23,577,761 research outputs across all sources so far. This one is in the 39th percentile – i.e., 39% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,016 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 14.8. This one is in the 26th percentile – i.e., 26% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 235,937 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 50% of its contemporaries.
We're also able to compare this research output to 15 others from the same source and published within six weeks on either side of this one. This one is in the 26th percentile – i.e., 26% of its contemporaries scored the same or lower than it.