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A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer

Overview of attention for article published in Hereditary Cancer in Clinical Practice, July 2018
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  • Good Attention Score compared to outputs of the same age (66th percentile)

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62 Mendeley
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Title
A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer
Published in
Hereditary Cancer in Clinical Practice, July 2018
DOI 10.1186/s13053-018-0095-z
Pubmed ID
Authors

Rachel Isaksson Vogel, Kristin Niendorf, Heewon Lee, Sue Petzel, Hee Yun Lee, Melissa A. Geller

Abstract

National guidelines recommend genetic counseling for all ovarian cancer patients because up to 20% of ovarian cancers are thought to be due to hereditary cancer syndromes and effective cancer screening and prevention options exist for at-risk family members. Despite these recommendations, uptake of genetic counselling and testing is low. The goal of this study was to identify barriers to and motivators for receipt of genetic counseling along with preferences regarding potential use of a mobile application to promote genetic counseling. Three focus groups were conducted including 14 women with a diagnosis of epithelial ovarian, primary peritoneal or fallopian tube cancer. Topics included understanding of genetic counseling, perceived pros and cons, preferences for receiving health information, and familiarity with mobile phone technology. Transcripts were analyzed using standard procedures of qualitative thematic text analysis and descriptive coding techniques. Six major themes regarding barriers to and motivators of genetic counseling and use of mobile technology in promoting genetic counseling emerged: (1) need for information, (2) relevance, (3) emotional concerns, (4) family concerns, (5) practical concerns, and (6) mobile application considerations. These data reiterate previously reported barriers to genetic counseling as observed in other populations. Participants were supportive of the use of mobile technology for promoting uptake of genetic counseling.

X Demographics

X Demographics

The data shown below were collected from the profiles of 9 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 62 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 62 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 11 18%
Student > Master 5 8%
Unspecified 3 5%
Researcher 3 5%
Professor 3 5%
Other 11 18%
Unknown 26 42%
Readers by discipline Count As %
Medicine and Dentistry 8 13%
Nursing and Health Professions 8 13%
Agricultural and Biological Sciences 4 6%
Unspecified 3 5%
Business, Management and Accounting 3 5%
Other 9 15%
Unknown 27 44%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 26 July 2018.
All research outputs
#6,966,514
of 25,385,509 outputs
Outputs from Hereditary Cancer in Clinical Practice
#52
of 260 outputs
Outputs of similar age
#112,276
of 341,350 outputs
Outputs of similar age from Hereditary Cancer in Clinical Practice
#1
of 3 outputs
Altmetric has tracked 25,385,509 research outputs across all sources so far. This one has received more attention than most of these and is in the 72nd percentile.
So far Altmetric has tracked 260 research outputs from this source. They receive a mean Attention Score of 4.8. This one has done well, scoring higher than 80% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 341,350 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 66% of its contemporaries.
We're also able to compare this research output to 3 others from the same source and published within six weeks on either side of this one. This one has scored higher than all of them