Recently received an HPP diagnosis and want to learn more? TAF President Deborah Myoho Ayres highly recommends this helpful article: https://t.co/ZUzQNAl0t6
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This is a really good article for the overview of childhood #hypophosphatasia and the goals and benefits of treatment with Strensiq. My disease is placed more in the childhood category but sometimes perinatal because born with skeletal deformities. #HPP ht
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Please check out our new review on #ChildhoodHypophosphatasia. A look at historical and current options #HPP https://t.co/jH3cqBXQLk
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Childhood hypophosphatasia: 5 key factors to treat or not are: decreased mobility, pain, rickets, deficits of growth, and fractures. #raredisease @SoftBonesCanada https://t.co/spIeo30BK0