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Social and economic costs and health-related quality of life in non-institutionalised patients with cystic fibrosis in the United Kingdom

Overview of attention for article published in BMC Health Services Research, September 2015
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Mentioned by

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1 tweeter

Citations

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38 Dimensions

Readers on

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182 Mendeley
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Title
Social and economic costs and health-related quality of life in non-institutionalised patients with cystic fibrosis in the United Kingdom
Published in
BMC Health Services Research, September 2015
DOI 10.1186/s12913-015-1061-3
Pubmed ID
Authors

Aris Angelis, Panos Kanavos, Julio López-Bastida, Renata Linertová, Elena Nicod, Pedro Serrano-Aguilar

Abstract

This study aimed to determine the societal economic burden and health-related quality of life (HRQOL) of cystic fibrosis (CF) patients in the UK. A bottom-up cost-of-illness, cross-sectional, retrospective analysis of 74 patients was conducted aiming to estimate the economic impact of CF. Data on demographic characteristics, health resource utilisation, informal care, productivity losses and HRQOL were collected from questionnaires completed by patients or their caregivers. HRQOL was measured with the EuroQol 5-domain (EQ-5D) instrument. Using unit costs for 2012 we found that the average annual cost for a CF patient was €48,603, with direct health care costs amounting to €20,854 (42.9 % of total costs), direct non-health care costs being €21,528 (44.3 %) and indirect costs attributable to productivity losses being €6,222 (12.8 %). On average, the largest expenditures by far were accounted for by informal care (44.1 %), followed by medications (14.5 %), acute hospitalisations (13.9 %), early retirement (9.1 %) and outpatient and primary health care visits (7.9 %). Sharp differences existed depending on whether CF patients were in need of caregiver help (€76,271 versus €26,335). In adult CF patients, mean EQ-5D index scores were 0.64 (0.93 in the general population) and mean EQ-5D visual analogue scale scores were 62.23 (86.84 in the general population); among caregivers, these scores were 0.836 and 80.85, respectively. Our analysis highlights the importance of the economic and quality of life consequences of CF from a societal perspective. The results highlight that beyond conventional costs such as acute hospitalisations, medication and outpatient and primary care visits, indirect costs related to informal care and early retirement, have significant societal implications. Similarly, our analysis showed that the average EQ-5D index score of adult CF patients was significantly lower than in the general population, an indication that a methodological bias may exist in using the latter in economic analyses. CF poses a significant cost burden on UK society, with non-health care and indirect costs representing 57 % of total average costs, and HRQOL being considerably lower than in the general population.

Twitter Demographics

The data shown below were collected from the profile of 1 tweeter who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 182 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 1 <1%
Spain 1 <1%
Brazil 1 <1%
Unknown 179 98%

Demographic breakdown

Readers by professional status Count As %
Student > Master 27 15%
Researcher 23 13%
Student > Bachelor 20 11%
Student > Ph. D. Student 19 10%
Other 16 9%
Other 27 15%
Unknown 50 27%
Readers by discipline Count As %
Medicine and Dentistry 35 19%
Biochemistry, Genetics and Molecular Biology 13 7%
Social Sciences 13 7%
Nursing and Health Professions 12 7%
Economics, Econometrics and Finance 11 6%
Other 38 21%
Unknown 60 33%

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 29 September 2015.
All research outputs
#3,023,840
of 6,415,361 outputs
Outputs from BMC Health Services Research
#1,664
of 2,535 outputs
Outputs of similar age
#108,279
of 201,232 outputs
Outputs of similar age from BMC Health Services Research
#85
of 132 outputs
Altmetric has tracked 6,415,361 research outputs across all sources so far. This one is in the 29th percentile – i.e., 29% of other outputs scored the same or lower than it.
So far Altmetric has tracked 2,535 research outputs from this source. They receive a mean Attention Score of 4.7. This one is in the 22nd percentile – i.e., 22% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 201,232 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 36th percentile – i.e., 36% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 132 others from the same source and published within six weeks on either side of this one. This one is in the 28th percentile – i.e., 28% of its contemporaries scored the same or lower than it.