Title |
The governance structure for data access in the DIRECT consortium: an innovative medicines initiative (IMI) project
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Published in |
Life Sciences, Society and Policy, September 2018
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DOI | 10.1186/s40504-018-0083-0 |
Pubmed ID | |
Authors |
Harriet J. A. Teare, Federico de Masi, Karina Banasik, Anna Barnett, Sanna Herrgard, Bernd Jablonka, Jacqueline W. M. Postma, Timothy J. McDonald, Ian Forgie, Piotr J. Chmura, Emil K. Rydzka, Ramneek Gupta, Soren Brunak, Ewan Pearson, Jane Kaye |
Abstract |
Biomedical research projects involving multiple partners from public and private sectors require coherent internal governance mechanisms to engender good working relationships. The DIRECT project is an example of such a venture, funded by the Innovative Medicines Initiative Joint Undertaking (IMI JU). This paper describes the data access policy that was developed within DIRECT to support data access and sharing, via the establishment of a 3-tiered Data Access Committee. The process was intended to allow quick access to data, whilst enabling strong oversight of how data were being accessed and by whom, and any subsequent analyses, to contribute to the overall objectives of the consortium. |
X Demographics
Geographical breakdown
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Unknown | 1 | 100% |
Demographic breakdown
Type | Count | As % |
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Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
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Unknown | 18 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
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Student > Ph. D. Student | 4 | 22% |
Student > Doctoral Student | 2 | 11% |
Librarian | 1 | 6% |
Student > Master | 1 | 6% |
Researcher | 1 | 6% |
Other | 1 | 6% |
Unknown | 8 | 44% |
Readers by discipline | Count | As % |
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Computer Science | 3 | 17% |
Medicine and Dentistry | 3 | 17% |
Nursing and Health Professions | 1 | 6% |
Biochemistry, Genetics and Molecular Biology | 1 | 6% |
Social Sciences | 1 | 6% |
Other | 1 | 6% |
Unknown | 8 | 44% |