↓ Skip to main content

Seeking and sharing: why the pulmonary fibrosis community engages the web 2.0 environment

Overview of attention for article published in BMC Pulmonary Medicine, January 2016
Altmetric Badge

About this Attention Score

  • Good Attention Score compared to outputs of the same age (73rd percentile)
  • High Attention Score compared to outputs of the same age and source (82nd percentile)

Mentioned by

twitter
8 X users
facebook
1 Facebook page

Readers on

mendeley
46 Mendeley
You are seeing a free-to-access but limited selection of the activity Altmetric has collected about this research output. Click here to find out more.
Title
Seeking and sharing: why the pulmonary fibrosis community engages the web 2.0 environment
Published in
BMC Pulmonary Medicine, January 2016
DOI 10.1186/s12890-016-0167-7
Pubmed ID
Authors

Karen Albright, Tarik Walker, Susan Baird, Linda Eres, Tara Farnsworth, Kaitlin Fier, Dolly Kervitsky, Marjorie Korn, David J. Lederer, Mark McCormick, John F. Steiner, Thomas Vierzba, Frederick S. Wamboldt, Jeffrey J. Swigris

Abstract

Pulmonary fibrosis (PF) is a rare, progressive disease that affects patients and their loved ones on many levels. We sought to better understand the needs and interests of PF patients and their loved ones (collectively "reader-participants") by systematically analyzing their engagement with the World Wide Web (the current version referred to as Web 2.0). Data were collected from three PF-focused, interactive websites hosted by physician-investigators with expertise in PF. All data generated by reader-participants for approximately 10 months were downloaded and then analyzed using qualitative content analysis methods. PF experts posted 38 blog entries and reader-participants posted 40 forum entries. Blogs received 363 responses, and forum entries received 108 responses from reader-participants. Reader-participants primarily used the three websites to seek information from or offer a contribution to the PF community. Information was sought about PF symptoms, diagnosis, prognosis, treatments, research, pathophysiology, and disease origin; reader-participants also made requests for new posts and pleas for research and sought clarification on existing content. Contributions included personal narratives about experiences with PF, descriptions of activities or behaviors found to be helpful with PF symptoms, resources or information about PF, and supportive comments to other PF sufferers. PF patients and their loved ones engage the Web 2.0 environment at these PF-focused sites to satisfy their needs to better understand PF and its impacts and to support others facing similar challenges. Clinicians may find it beneficial to encourage PF patients' involvement in internet forums that foster dynamic, bi-directional information sharing.

X Demographics

X Demographics

The data shown below were collected from the profiles of 8 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 46 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 46 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 12 26%
Researcher 6 13%
Student > Ph. D. Student 6 13%
Student > Bachelor 4 9%
Other 3 7%
Other 7 15%
Unknown 8 17%
Readers by discipline Count As %
Medicine and Dentistry 12 26%
Nursing and Health Professions 6 13%
Computer Science 4 9%
Psychology 3 7%
Social Sciences 3 7%
Other 9 20%
Unknown 9 20%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 17 January 2016.
All research outputs
#7,062,956
of 24,836,260 outputs
Outputs from BMC Pulmonary Medicine
#542
of 2,175 outputs
Outputs of similar age
#107,761
of 406,423 outputs
Outputs of similar age from BMC Pulmonary Medicine
#8
of 41 outputs
Altmetric has tracked 24,836,260 research outputs across all sources so far. This one has received more attention than most of these and is in the 71st percentile.
So far Altmetric has tracked 2,175 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.6. This one has gotten more attention than average, scoring higher than 74% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 406,423 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 73% of its contemporaries.
We're also able to compare this research output to 41 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 82% of its contemporaries.