RT @longevitycourse: Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportu…
1,352 followers
2,151 followers
Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study. https://t.co/wvtDGV77LS
14,208 followers
#NIAMSResearch @ChildrensHealth: “Assessing disease experience across the life span for individuals with #OsteogenesisImperfecta: challenges & opportunities for patient-reported outcomes (PROs) measurement.” https://t.co/DwFHysNazd. Open Access paper @
1,839 followers
RT @pulseinfoframe: A study just published in the @ojrarediseases demonstrates how useful a patient registry can be in collecting real worl…