#Communication between #parents of children w #raredisease & #physician is a critical tool in #patient #outcomes. As a #caregiver I have experienced 1st ✋🏻 how the lack of #communication can not only hinder positive outcomes but can also cause #harm.
RT @22Q11_Ireland: Individually rare collectively common. #raredisease @sujas15 "The experience of parents of children with rare diseases w…
RT @EmmaLouiseEos: Very interesting article on parent/doctor trust #raredisease https://t.co/vpJtM2r4Mq
RT @22Q11_Ireland: Individually rare collectively common. #raredisease @sujas15 "The experience of parents of children with rare diseases w…