Title |
Shared communication processes within healthcare teams for rare diseases and their influence on healthcare professionals' innovative behavior and patient satisfaction
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Published in |
Implementation Science, April 2011
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DOI | 10.1186/1748-5908-6-40 |
Pubmed ID | |
Authors |
Henrike Hannemann-Weber, Maura Kessel, Karolina Budych, Carsten Schultz |
Abstract |
A rare disease is a pattern of symptoms that afflicts less than five in 10,000 patients. However, as about 6,000 different rare disease patterns exist, they still have significant epidemiological relevance. We focus on rare diseases that affect multiple organs and thus demand that multidisciplinary healthcare professionals (HCPs) work together. In this context, standardized healthcare processes and concepts are mainly lacking, and a deficit of knowledge induces uncertainty and ambiguity. As such, individualized solutions for each patient are needed. This necessitates an intensive level of innovative individual behavior and thus, adequate idea generation. The final implementation of new healthcare concepts requires the integration of the expertise of all healthcare team members, including that of the patients. Therefore, knowledge sharing between HCPs and shared decision making between HCPs and patients are important. The objective of this study is to assess the contribution of shared communication and decision-making processes in patient-centered healthcare teams to the generation of innovative concepts and consequently to improvements in patient satisfaction. |
X Demographics
Geographical breakdown
Country | Count | As % |
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Greece | 1 | 33% |
Spain | 1 | 33% |
Unknown | 1 | 33% |
Demographic breakdown
Type | Count | As % |
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Members of the public | 2 | 67% |
Practitioners (doctors, other healthcare professionals) | 1 | 33% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
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Brazil | 3 | 2% |
Unknown | 122 | 98% |
Demographic breakdown
Readers by professional status | Count | As % |
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Student > Master | 23 | 18% |
Researcher | 21 | 17% |
Student > Ph. D. Student | 14 | 11% |
Student > Postgraduate | 10 | 8% |
Student > Doctoral Student | 7 | 6% |
Other | 29 | 23% |
Unknown | 21 | 17% |
Readers by discipline | Count | As % |
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Medicine and Dentistry | 21 | 17% |
Business, Management and Accounting | 17 | 14% |
Social Sciences | 14 | 11% |
Nursing and Health Professions | 13 | 10% |
Psychology | 11 | 9% |
Other | 24 | 19% |
Unknown | 25 | 20% |