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X Demographics
Mendeley readers
Attention Score in Context
| Title |
An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes
|
|---|---|
| Published in |
BMC Palliative Care, July 2016
|
| DOI | 10.1186/s12904-016-0127-2 |
| Pubmed ID | |
| Authors |
Geena Saini, Elizabeth L. Sampson, Sarah Davis, Nuriye Kupeli, Jane Harrington, Gerard Leavey, Irwin Nazareth, Louise Jones, Kirsten J. Moore |
| Abstract |
Most people with advanced dementia die in nursing homes where families may have to make decisions as death approaches. Discussions about end-of-life care between families and nursing home staff are uncommon, despite a range of potential benefits. In this study we aimed to examine practices relating to end-of-life discussions with family members of people with advanced dementia residing in nursing homes and to explore strategies for improving practice. An ethnographic study in two nursing homes where the Compassion Intervention was delivered. The Compassion Intervention provides a model of end-of-life care engaging an Interdisciplinary Care Leader to promote integrated care, educate staff, support holistic assessments and discuss end of life with families. We used a framework approach, undertaking a thematic analysis of fieldwork notes and observations recorded in a reflective diary kept by the Interdisciplinary Care Leader, and data from in-depth interviews with 23 informants: family members, GPs, nursing home staff, and external healthcare professionals. Four major themes described strategies for improving practice: (i) educating families and staff about dementia progression and end-of-life care; (ii) appreciating the greater value of in-depth end-of-life discussions compared with simple documentation of care preferences; (iii) providing time and space for sensitive discussions; and (iv) having an independent healthcare professional or team with responsibility for end-of-life discussions. The Interdisciplinary Care Leader role offers a promising method for supporting and improving end-of-life care discussions between families of people with advanced dementia and nursing home staff. These strategies warrant further evaluation in nursing home settings. |
X Demographics
The data shown below were collected from the profiles of 16 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 10 | 63% |
| Canada | 2 | 13% |
| New Zealand | 1 | 6% |
| Unknown | 3 | 19% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 10 | 63% |
| Practitioners (doctors, other healthcare professionals) | 4 | 25% |
| Scientists | 2 | 13% |
Mendeley readers
The data shown below were compiled from readership statistics for 262 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Uruguay | 1 | <1% |
| Unknown | 261 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Master | 40 | 15% |
| Student > Bachelor | 34 | 13% |
| Researcher | 24 | 9% |
| Student > Ph. D. Student | 24 | 9% |
| Student > Doctoral Student | 24 | 9% |
| Other | 48 | 18% |
| Unknown | 68 | 26% |
| Readers by discipline | Count | As % |
|---|---|---|
| Nursing and Health Professions | 66 | 25% |
| Medicine and Dentistry | 41 | 16% |
| Psychology | 29 | 11% |
| Social Sciences | 16 | 6% |
| Unspecified | 4 | 2% |
| Other | 24 | 9% |
| Unknown | 82 | 31% |
Attention Score in Context
This research output has an Altmetric Attention Score of 10. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 10 August 2016.
All research outputs
#3,819,806
of 25,515,042 outputs
Outputs from BMC Palliative Care
#496
of 1,526 outputs
Outputs of similar age
#65,986
of 371,280 outputs
Outputs of similar age from BMC Palliative Care
#9
of 26 outputs
Altmetric has tracked 25,515,042 research outputs across all sources so far. Compared to these this one has done well and is in the 85th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,526 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 9.2. This one has gotten more attention than average, scoring higher than 67% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 371,280 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 82% of its contemporaries.
We're also able to compare this research output to 26 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 69% of its contemporaries.