| Title |
Improvements needed to support people living and working with a rare disease in Northern Ireland: current rare disease support perceived as inadequate
|
|---|---|
| Published in |
Orphanet Journal of Rare Diseases, November 2020
|
| DOI | 10.1186/s13023-020-01559-6 |
| Pubmed ID | |
| Authors |
Julie McMullan, Ashleen L. Crowe, Caitlin Bailie, Kerry Moore, Lauren S. McMullan, Nahid Shamandi, Helen McAneney, Amy Jayne McKnight |
X Demographics
The data shown below were collected from the profiles of 13 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 7 | 54% |
| Ireland | 2 | 15% |
| Unknown | 4 | 31% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 7 | 54% |
| Scientists | 5 | 38% |
| Science communicators (journalists, bloggers, editors) | 1 | 8% |
Mendeley readers
The data shown below were compiled from readership statistics for 45 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 45 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Bachelor | 7 | 16% |
| Researcher | 6 | 13% |
| Lecturer | 3 | 7% |
| Student > Master | 3 | 7% |
| Student > Ph. D. Student | 3 | 7% |
| Other | 3 | 7% |
| Unknown | 20 | 44% |
| Readers by discipline | Count | As % |
|---|---|---|
| Medicine and Dentistry | 7 | 16% |
| Nursing and Health Professions | 5 | 11% |
| Biochemistry, Genetics and Molecular Biology | 3 | 7% |
| Psychology | 2 | 4% |
| Social Sciences | 2 | 4% |
| Other | 5 | 11% |
| Unknown | 21 | 47% |
Attention Score in Context
This research output has an Altmetric Attention Score of 8. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 02 March 2022.
All research outputs
#4,051,060
of 23,243,271 outputs
Outputs from Orphanet Journal of Rare Diseases
#544
of 2,667 outputs
Outputs of similar age
#97,829
of 418,498 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#6
of 52 outputs
Altmetric has tracked 23,243,271 research outputs across all sources so far. Compared to these this one has done well and is in the 82nd percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,667 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.7. This one has done well, scoring higher than 79% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 418,498 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 76% of its contemporaries.
We're also able to compare this research output to 52 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 90% of its contemporaries.