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An international registry for neurodegeneration with brain iron accumulation

Overview of attention for article published in Orphanet Journal of Rare Diseases, September 2012
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Title
An international registry for neurodegeneration with brain iron accumulation
Published in
Orphanet Journal of Rare Diseases, September 2012
DOI 10.1186/1750-1172-7-66
Pubmed ID
Authors

Bernadette Kalman, Ronald Lautenschlaeger, Florian Kohlmayer, Boriana Büchner, Thomas Kmiec, Thomas Klopstock, Klaus A Kuhn

Abstract

We report the development of an international registry for Neurodegeneration with Brain Iron Accumulation (NBIA), in the context of TIRCON (Treat Iron-Related Childhood-Onset Neurodegeneration), an EU-FP7 - funded project. This registry aims to combine scattered resources, integrate clinical and scientific knowledge, and generate a rich source for future research studies. This paper describes the content, architecture and future utility of the registry with the intent to capture as many NBIA patients as possible and to offer comprehensive information to the international scientific community.

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 31 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Germany 2 6%
Spain 1 3%
Unknown 28 90%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 6 19%
Researcher 5 16%
Student > Ph. D. Student 2 6%
Other 2 6%
Professor 2 6%
Other 9 29%
Unknown 5 16%
Readers by discipline Count As %
Medicine and Dentistry 7 23%
Neuroscience 7 23%
Agricultural and Biological Sciences 4 13%
Biochemistry, Genetics and Molecular Biology 2 6%
Chemistry 2 6%
Other 3 10%
Unknown 6 19%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 17 September 2012.
All research outputs
#17,665,425
of 22,678,224 outputs
Outputs from Orphanet Journal of Rare Diseases
#1,994
of 2,595 outputs
Outputs of similar age
#124,733
of 170,681 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#22
of 28 outputs
Altmetric has tracked 22,678,224 research outputs across all sources so far. This one is in the 19th percentile – i.e., 19% of other outputs scored the same or lower than it.
So far Altmetric has tracked 2,595 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.4. This one is in the 18th percentile – i.e., 18% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 170,681 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 23rd percentile – i.e., 23% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 28 others from the same source and published within six weeks on either side of this one. This one is in the 7th percentile – i.e., 7% of its contemporaries scored the same or lower than it.