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X Demographics
Mendeley readers
Attention Score in Context
| Title |
Identifying families’ shared disease experiences through a qualitative analysis of online twin-to-twin transfusion syndrome stories
|
|---|---|
| Published in |
BMC Pregnancy and Childbirth, July 2016
|
| DOI | 10.1186/s12884-016-0952-6 |
| Pubmed ID | |
| Authors |
Rebecca Fischbein, James Meeker, Julia R. Saling, Michelle Chyatte, Lauren Nicholas |
| Abstract |
Twin-to-twin transfusion syndrome (TTTS) affects 10-20 % of monochorionic diamniotic (MCDA) births and accounts for 50 % of fetal loss in MCDA pregnancies. This exploratory qualitative study identified shared experiences, including potential emotional and psychosocial impacts, of this serious disease. Forty-five publicly accessible, online stories posted by families who experienced TTTS were analyzed using grounded theory. Shared TTTS experiences included a common trajectory: early pregnancy experiences, diagnostic experiences, making decisions, interventions and variable outcomes. Families vacillated between emotional highs such as joy, excitement and relief, and lows including depression, anxiety, anger and grief. TTTS disease experience can be considered an "emotional roller coaster" exacerbated by TTTS's unpredictable and quickly changing nature with the potential for emotional and psychosocial effects. Increased TTTS awareness and research about its corresponding impacts can ensure appropriate patient and family support at all phases of the TTTS experience. |
X Demographics
The data shown below were collected from the profiles of 7 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United Kingdom | 2 | 29% |
| Ireland | 1 | 14% |
| Unknown | 4 | 57% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 3 | 43% |
| Scientists | 3 | 43% |
| Practitioners (doctors, other healthcare professionals) | 1 | 14% |
Mendeley readers
The data shown below were compiled from readership statistics for 74 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 74 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Ph. D. Student | 11 | 15% |
| Student > Master | 11 | 15% |
| Student > Bachelor | 9 | 12% |
| Researcher | 6 | 8% |
| Student > Postgraduate | 4 | 5% |
| Other | 11 | 15% |
| Unknown | 22 | 30% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 20 | 27% |
| Medicine and Dentistry | 16 | 22% |
| Nursing and Health Professions | 12 | 16% |
| Biochemistry, Genetics and Molecular Biology | 1 | 1% |
| Agricultural and Biological Sciences | 1 | 1% |
| Other | 3 | 4% |
| Unknown | 21 | 28% |
Attention Score in Context
This research output has an Altmetric Attention Score of 6. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 29 July 2016.
All research outputs
#5,870,496
of 22,881,154 outputs
Outputs from BMC Pregnancy and Childbirth
#1,609
of 4,208 outputs
Outputs of similar age
#98,133
of 355,948 outputs
Outputs of similar age from BMC Pregnancy and Childbirth
#40
of 99 outputs
Altmetric has tracked 22,881,154 research outputs across all sources so far. This one has received more attention than most of these and is in the 74th percentile.
So far Altmetric has tracked 4,208 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.8. This one has gotten more attention than average, scoring higher than 61% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 355,948 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 72% of its contemporaries.
We're also able to compare this research output to 99 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 58% of its contemporaries.