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Data silos are undermining drug development and failing rare disease patients

Overview of attention for article published in Orphanet Journal of Rare Diseases, April 2021
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (92nd percentile)
  • High Attention Score compared to outputs of the same age and source (93rd percentile)

Mentioned by

news
1 news outlet
twitter
29 X users

Citations

dimensions_citation
18 Dimensions

Readers on

mendeley
37 Mendeley
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Title
Data silos are undermining drug development and failing rare disease patients
Published in
Orphanet Journal of Rare Diseases, April 2021
DOI 10.1186/s13023-021-01806-4
Pubmed ID
Authors

Nathan Denton, Monique Molloy, Samantha Charleston, Craig Lipset, Jonathan Hirsch, Andrew E. Mulberg, Paul Howard, Eric D. Marsh

X Demographics

X Demographics

The data shown below were collected from the profiles of 29 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 37 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 37 100%

Demographic breakdown

Readers by professional status Count As %
Researcher 5 14%
Student > Ph. D. Student 4 11%
Student > Bachelor 2 5%
Student > Doctoral Student 2 5%
Student > Postgraduate 2 5%
Other 5 14%
Unknown 17 46%
Readers by discipline Count As %
Medicine and Dentistry 4 11%
Biochemistry, Genetics and Molecular Biology 3 8%
Computer Science 2 5%
Nursing and Health Professions 2 5%
Social Sciences 2 5%
Other 6 16%
Unknown 18 49%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 35. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 19 April 2023.
All research outputs
#1,125,710
of 24,932,434 outputs
Outputs from Orphanet Journal of Rare Diseases
#109
of 2,999 outputs
Outputs of similar age
#30,445
of 433,993 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#7
of 87 outputs
Altmetric has tracked 24,932,434 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 95th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,999 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.1. This one has done particularly well, scoring higher than 96% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 433,993 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 92% of its contemporaries.
We're also able to compare this research output to 87 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 93% of its contemporaries.