↓ Skip to main content

The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems

Overview of attention for article published in Orphanet Journal of Rare Diseases, October 2021
Altmetric Badge

About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • Among the highest-scoring outputs from this source (#17 of 3,110)
  • High Attention Score compared to outputs of the same age (98th percentile)
  • High Attention Score compared to outputs of the same age and source (99th percentile)

Mentioned by

news
23 news outlets
blogs
3 blogs
twitter
10 X users
facebook
2 Facebook pages

Citations

dimensions_citation
34 Dimensions

Readers on

mendeley
60 Mendeley
You are seeing a free-to-access but limited selection of the activity Altmetric has collected about this research output. Click here to find out more.
Title
The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems
Published in
Orphanet Journal of Rare Diseases, October 2021
DOI 10.1186/s13023-021-02061-3
Pubmed ID
Authors

Ainslie Tisdale, Christine M. Cutillo, Ramaa Nathan, Pierantonio Russo, Bryan Laraway, Melissa Haendel, Douglas Nowak, Cindy Hasche, Chun-Hung Chan, Emily Griese, Hugh Dawkins, Oodaye Shukla, David A. Pearce, Joni L. Rutter, Anne R. Pariser

X Demographics

X Demographics

The data shown below were collected from the profiles of 10 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 60 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 60 100%

Demographic breakdown

Readers by professional status Count As %
Researcher 7 12%
Student > Ph. D. Student 7 12%
Student > Bachelor 3 5%
Professor 3 5%
Student > Master 3 5%
Other 4 7%
Unknown 33 55%
Readers by discipline Count As %
Biochemistry, Genetics and Molecular Biology 8 13%
Medicine and Dentistry 4 7%
Engineering 3 5%
Nursing and Health Professions 2 3%
Agricultural and Biological Sciences 2 3%
Other 6 10%
Unknown 35 58%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 196. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 28 February 2024.
All research outputs
#201,725
of 25,391,701 outputs
Outputs from Orphanet Journal of Rare Diseases
#17
of 3,110 outputs
Outputs of similar age
#5,417
of 442,267 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#1
of 122 outputs
Altmetric has tracked 25,391,701 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 99th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,110 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has done particularly well, scoring higher than 99% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 442,267 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 98% of its contemporaries.
We're also able to compare this research output to 122 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 99% of its contemporaries.