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Patient involvement in rare diseases research: a scoping review of the literature and mixed method evaluation of Norwegian researchers’ experiences and perceptions

Overview of attention for article published in Orphanet Journal of Rare Diseases, May 2022
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (80th percentile)
  • High Attention Score compared to outputs of the same age and source (81st percentile)

Mentioned by

twitter
14 X users

Citations

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2 Dimensions

Readers on

mendeley
26 Mendeley
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Title
Patient involvement in rare diseases research: a scoping review of the literature and mixed method evaluation of Norwegian researchers’ experiences and perceptions
Published in
Orphanet Journal of Rare Diseases, May 2022
DOI 10.1186/s13023-022-02357-y
Pubmed ID
Authors

Gry Velvin, Thale Hartman, Trine Bathen

X Demographics

X Demographics

The data shown below were collected from the profiles of 14 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 26 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 26 100%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 5 19%
Student > Master 3 12%
Student > Bachelor 2 8%
Student > Postgraduate 1 4%
Lecturer > Senior Lecturer 1 4%
Other 2 8%
Unknown 12 46%
Readers by discipline Count As %
Nursing and Health Professions 3 12%
Psychology 3 12%
Medicine and Dentistry 3 12%
Social Sciences 2 8%
Immunology and Microbiology 1 4%
Other 3 12%
Unknown 11 42%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 9. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 15 July 2022.
All research outputs
#4,184,299
of 25,342,911 outputs
Outputs from Orphanet Journal of Rare Diseases
#574
of 3,066 outputs
Outputs of similar age
#83,043
of 436,911 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#18
of 99 outputs
Altmetric has tracked 25,342,911 research outputs across all sources so far. Compared to these this one has done well and is in the 83rd percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 3,066 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.2. This one has done well, scoring higher than 81% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 436,911 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 80% of its contemporaries.
We're also able to compare this research output to 99 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 81% of its contemporaries.