Patient involvement in rare diseases research: a scoping review of the literature and mixed method evaluation of Norwegian researchers’ experiences and perceptions

Overview of attention for article published in Orphanet Journal of Rare Diseases, May 2022

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In the top 25% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (80th percentile)
High Attention Score compared to outputs of the same age and source (81st percentile)

So far, Altmetric has seen 14 X posts from 14 X users, with an upper bound of 39,782 followers.

RT @iexp_paciente: Involucrar pacientes en ensayos clínicos es importante, pero en #enfermedadesraras es crucial. Un interesante estudio no…

RT @iexp_paciente: Involucrar pacientes en ensayos clínicos es importante, pero en #enfermedadesraras es crucial. Un interesante estudio no…

RT @iexp_paciente: Involucrar pacientes en ensayos clínicos es importante, pero en #enfermedadesraras es crucial. Un interesante estudio no…

RT @iexp_paciente: Involucrar pacientes en ensayos clínicos es importante, pero en #enfermedadesraras es crucial. Un interesante estudio no…

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