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A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry

Overview of attention for article published in Orphanet Journal of Rare Diseases, March 2014
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  • Good Attention Score compared to outputs of the same age (73rd percentile)
  • High Attention Score compared to outputs of the same age and source (80th percentile)

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8 X users

Citations

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102 Mendeley
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Title
A population-based registry as a source of health indicators for rare diseases: the ten-year experience of the Veneto Region’s rare diseases registry
Published in
Orphanet Journal of Rare Diseases, March 2014
DOI 10.1186/1750-1172-9-37
Pubmed ID
Authors

Monica Mazzucato, Laura Visonà Dalla Pozza, Silvia Manea, Cinzia Minichiello, Paola Facchin

Abstract

Although rare diseases have become a major public health issue, there is a paucity of population-based data on rare diseases. The aim of this epidemiological study was to provide descriptive figures referring to a sizable group of unrelated rare diseases.

X Demographics

X Demographics

The data shown below were collected from the profiles of 8 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 102 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
United Kingdom 1 <1%
Italy 1 <1%
Unknown 100 98%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 17 17%
Researcher 16 16%
Student > Master 12 12%
Student > Doctoral Student 6 6%
Student > Bachelor 6 6%
Other 22 22%
Unknown 23 23%
Readers by discipline Count As %
Medicine and Dentistry 34 33%
Biochemistry, Genetics and Molecular Biology 11 11%
Nursing and Health Professions 8 8%
Social Sciences 5 5%
Computer Science 4 4%
Other 16 16%
Unknown 24 24%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 14 June 2014.
All research outputs
#6,782,618
of 24,878,531 outputs
Outputs from Orphanet Journal of Rare Diseases
#905
of 2,991 outputs
Outputs of similar age
#59,937
of 229,033 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#6
of 25 outputs
Altmetric has tracked 24,878,531 research outputs across all sources so far. This one has received more attention than most of these and is in the 72nd percentile.
So far Altmetric has tracked 2,991 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 8.1. This one has gotten more attention than average, scoring higher than 69% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 229,033 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 73% of its contemporaries.
We're also able to compare this research output to 25 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 80% of its contemporaries.